Education Program Director, Vasculitis Foundation

Bachelor’s degree in Education, Health Sciences, Communications, or a related field. Minimum of 5-7 years supervisory and team leadership experience. Background in medical or rare-disease subject matter and terminology. Strong understanding of adult learning principles. Ability to translate complex concepts into engaging, accessible formats. Exceptional project management skills. Proven ability to oversee multiple timelines, deliverables, and workflows. Strong sense of ownership, initiative, follow-through, and commitment to excellence. Highly detail-oriented. Skilled at maintaining organization and precision. Excellent written and verbal communication skills. Ability to build rapport with diverse audiences. Proficiency with common digital tools and platforms including Google Suite, MS Office, Zoom, Slack, WordPress, and other project management platforms. Willingness to travel for job-related events, meetings, and conferences approximately 2-6 times per year. Flexible mindset and ability to adapt easily to shifting priorities.

Lead rare-disease education efforts, defining goals and program direction. Develop and oversee patient and HCP educational materials and programs. Manage multiple educational projects, developing timelines and ensuring alignment with plans, budgets, and schedules. Oversee medical review processes and revisions to educational materials and website content. Ensure educational materials and programs are inclusive and accessible. Design and conduct surveys and focus groups to gather feedback. Identify opportunities for collaboration with other rare disease organizations. Stay current on health education learning trends and vasculitis-related research. Develop measurable, outcomes-driven educational goals for conferences. Plan and execute educational programming, topics, and speakers for patient education conferences. Represent the VF at in-person conferences. Conduct and oversee pre- and post-conference communications, evaluation surveys, and documentation. Collaborate with staff, volunteers, medical professionals, patients, and community partners. Provide support and guidance to team members and volunteers. Participate in planning meetings and shared projects. Maintain professional and timely communication with all VF stakeholders.