Director, Patient Services, Rare Neuromuscular Disorders
New
I
ITFRare disease pharmaceuticals
Location: United States
Location: RemoteFull-TimeDirector
Salary230,000 - 250,000 USD per year
Apply NowOpens the employer's application page
Job Details
- Experience
- Minimum of 8–10 years of experience in the pharmaceutical, biotechnology, or life sciences industry. At least 3–5 years of demonstrated success managing high-touch, lower-volume patient support models within the rare disease or orphan drug landscape.
- Required Skills
- HIPAA
Requirements
- Bachelor’s degree required; advanced degree preferred.
- Minimum of 8–10 years of experience in the pharmaceutical, biotechnology, or life sciences industry.
- Deep practical expertise in specialty drug distribution.
- Expertise in specialty pharmacy operations and third-party patient service Hub frameworks.
- At least 3–5 years of demonstrated success managing high-touch, lower-volume patient support models.
- Experience in the rare disease or orphan drug landscape.
- Proven track record directly managing an external third-party vendor relationship.
- Direct experience with an exclusive or all-in combined Hub/Specialty Pharmacy partner model is highly preferred.
- Experience overseeing clinical nursing networks, field health educators, or in-home diagnostic/lab monitoring programs is advantageous.
- Foundational understanding of HIPAA data privacy regulations and OIG guidelines governing patient support services and interactions with patient communities.
Responsibilities
- Serve as the primary relationship manager and strategic point of contact for the exclusive combined Hub/Specialty Pharmacy partner.
- Manage day-to-day vendor operations and optimize time-to-first-fill, conversion, and persistency metrics.
- Maintain and update Hub business rules, communication workflows, and standard operating procedures.
- Refine the ITF ARC program framework to address commercial and government access barriers and minimize patient drop-offs.
- Direct the third-party partner responsible for the in-home lab monitoring program.
- Ensure lab monitoring operations, data aggregation, and compliant reporting to prescribing healthcare providers and ITF.
- Maintain and enhance data exchange and analytics pipelines with Hub/Specialty Pharmacy and ancillary vendors.
- Analyze patient funnel metrics, data feeds, operational KPIs, and adherence trends for leadership.
- Partner with Field Reimbursement Managers and national accounts teams to resolve patient issues, complex appeals, and localized access challenges.
- Oversee commercial co-pay assistance, QuickStart/bridge programs, and Patient Assistance Programs.
View Full Description & ApplyYou'll be redirected to the employer's site
