Cure HHT

Cure HHT is the cornerstone of the HHT community. Our vision is to accelerate a cure and enhance the quality of life for patients with HHT while our mission is to be the global catalyst that improves the lives of the HHT community by accelerating life-changing scientific innovation, increasing diagnosis, and enhancing care.

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πŸ“ United States

🧭 Full-Time

πŸ” Nonprofit, healthcare, rare disease

  • Bachelor's degree in public health, education, event management, social work, communications, or related field; Master’s degree preferred.
  • 3-5 years of experience in community program management, patient advocacy, or nonprofit management.
  • Experience with Salesforce, Classy, and Wordpress is required.
  • Passionate about social impact and supporting a growing nonprofit.
  • Develop and implement a comprehensive virtual education strategy including webinars and online workshops.
  • Lead planning and execution of national patient conferences and revamp regional events.
  • Oversee creation of educational resources for patients and caregivers.
  • Coordinate research sessions and involvement in industry conferences.
  • Lead legislative advocacy efforts and grow volunteer engagement.
  • Collaborate with internal teams and build relationships with healthcare providers.

Project ManagementData AnalysisSalesforceContent creationCollaborationWordPress

Posted 4 days ago
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