Bachelor's degree in public health, education, event management, social work, communications, or related field; Master’s degree preferred.
3-5 years of experience in community program management, patient advocacy, or nonprofit management, preferably within the healthcare or rare disease space.
Experience with Salesforce, Classy, Wordpress.
Responsibilities:
Develop and implement a comprehensive virtual education strategy, including webinars and online workshops.
Lead the planning and execution of national patient conferences and collaborate on healthcare provider programs.
Oversee the creation and distribution of educational resources for patients, caregivers, and providers.
Coordinate legislative advocacy program and increase volunteer engagement.